WELCOME TO MY CRAZY WORLD
Hi Everyone, Ive created this blog because I will find it easier to keep all my wonderful caring friends and family up to date with whats going on in my fight against Cancer.
Just a quick explanation about what has happened so far, back in October I was creaming my neck (trying to stop the wrinkles) and I found a lump I went to the GP late October, who thought it would be best for me to go and have an Xray and bloods taken, when the results came back there was nothing but my GP wasn't happy and sent me back to the hospital for more bloods and referred me to a haematologist, Dr Joseph. Dr Joseph gave me an appointment for his clinic very quickly and decided the best thing was for me to have a biopsy, now the results came back showing that the lump in my lymph node was secondary cancer which came as a huge shock to me I was sure that it was just Cancer in my neck and it would be all sorted really quickly. Dr Joseph arranged for me to have a MRI and to be now looked after Dr Watson. When we went to meet Dr Watson he told us that the primary Cancer was in my left tonsil, he checked inside my nose with a camera and was sure the primary was in my tonsil, I was then booked in for an operation to remove the left tonsil unfortunately the doctors couldn't remove all the Cancer from my tonsil but I was reassured that they could treat it with radiation and chemotherapy.
Monday the 9th of January we went to DRI to see Dr Watson who checked my throat and told us that the left tonsil was certainly the primary but just to make sure I was still to have a PET scan, we then went to meet Dr Foran (Consultant Clinical Oncologist) who explained to us what was going to happen next and she also explained about a trial that was about to start, and that if I wanted I could be part of that trial. The purpose of the study is to test a new type of treatment for cancer, I was really interested in being part of this as it would help me to feel like I was giving something back for all wonderful care I have and will be receiving, but I needed to take all the information home and read it to make sure it was right for not just me but my family.
A plan was put in place I would start 7 weeks of radiation treatment with 3 chemotherapy sessions within the 7weeks, in about 3-4 weeks I needed a mask making of my face to protect the areas that didn't need radiation, (I told Dad the Drs are cloning me lol) I needed to have a PEG fitted in my stomach so when I can't eat, because my mouth is too sore I can still receiving food through the PEG, (not looking forward to this) I needed more bloods taken, I needed to meet with the speech therapist, I was to visit Sir Charles Clifford Dentist hospital to make sure all my teeth are strong enough for the treatment and I was to have a PET scan. We would also be invited to an open evening a Weston Park so we could look round and the kids could come too so they could see it wasn't scary what is going to happen to Mummy.
That night I told our 3 beautiful children that Mummy had Cancer and that I wouldn't die I would get better, it would be a bit of a journey but I would get better. Then I told the world on FB xxxx
Date 12th of January
So today Im off to receive the PET Scan at Rotherham Hospital a bit worried dont know whats going to happen.
Here is the web address for the explanation of a PET Scan
http://www.nhs.uk/Conditions/PET-scan/Pages/Introduction.aspx
Everyone was really nice I was going to be there for 2 hours so Jason went off for a cup of tea, I went in to a lorry how cool is that it's a mobile PET Scan, a nice guy injected me with some radiation (it didn't hurt) then I had to wait for roughly 45 mins or so before I could go in the scanner, I was in the scanner for about 25 mins this was a bit uncomfortable but Ive just got to suck it up and get on with it, and then we could go home.
On the way home I received a telephone call about me going on the trial, I am so excited about this It's a little bit I can do that hopefully will help the future treatment of Cancer.
I was told I couldn't go near the kids till tomorrow, due to the radiation that was in my body. Thats hard not being able to kiss them and hug them.
Im really sleepy again so Im going to try and get some sleep love to you all xxxxxxxxxxxxx.
Oh my god , I am in tears reading this , we had no idea what you all have been going through for the last 3 months , you are one very brave lady , do you know that , take care and if there is anything we can do , we are only across the road , sending you lots of love ,
ReplyDeleteBless your heart. I have only known you a short while as my consultant and You are a strong inspiring lady. I have every faith that you will beat this horrid disease. Stay strong and keep the sparkle xxx
ReplyDeleteYou are a very brave lady with a journey ahead of you that will be hard but you are also very strong and I am confident that you will beat this b.....d disease. Lots of love sparkly princess.
ReplyDeleteWhat a courageous lady you are. Like many people I am on the other side of treatment to you but 7 weeks of treatment will end sooner than you think, hey its only 49 days. Keep strong and look this imposter in the eye and tell it to sod off. AND just know that when I get to target and get me blingy and certificate it has to be you that gives it to me.stay strong sparkly lady and you will be in my thoughts and prayers always xx
ReplyDeleteWhat a courageous lady you are. Like many people I am on the other side of treatment to you but 7 weeks of treatment will end sooner than you think, hey its only 49 days. Keep strong and look this imposter in the eye and tell it to sod off. AND just know that when I get to target and get me blingy and certificate it has to be you that gives it to me.stay strong sparkly lady and you will be in my thoughts and prayers always xx
ReplyDeleteCan't imagine what you are going through, but I do know what a tough cookie you are and with your dogged determination you will beat this awful disease. You are one very courageous lady and a great inspiration to us all. Stay strong Amanda and keep Sparkling. Xxxx
ReplyDeleteCan't imagine what you are going through, but I do know what a tough cookie you are and with your dogged determination you will beat this awful disease. You are one very courageous lady and a great inspiration to us all. Stay strong Amanda and keep Sparkling. Xxxx
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ReplyDeleteI know the hardest thing would be not kissing your kids goodnight lovely but I also know if there's anyone with the spirit, humour and sheer balls to kick this into touch it's you. Much love xxx
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ReplyDeleteThank you to everyone who is supporting my lovely wife. Our kids and i are so amazed and her support. And want to thank you all. It means so much to her and us. Thank you all again.
ReplyDeleteLots and lots of love, hugs and strength sent your way Amanda. My heart aches reading this, no one should have to go through it however the trials are very good and closely monitored (my daughter was on one) Be brave, be your gorgeous happy self and kick its ass, you can do this xxxxxx
ReplyDeleteIf anyone can beat this it will be you Amanda! The sparkle shines from your every smile. You just remember the army of people behind #teamamandasparkle we will all be with you every step of the way. Much love and hugs DLxxxxx
ReplyDeleteLots of love Amanda and stay strong xxxxx
ReplyDeleteGo kick its ass Amanda, lots of love ❤️ Sharon B x
ReplyDeleteYou are one of the most enthusiastic, positive, fabulously awesome people I have ever met, you will knock the socks off C. I had a PEP scan two years ago, I was a bit disappointed when I didn't glow in the dark lol. Ooooodles of love and healing wishes coming your way xxxx
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