6th of Feb

Good evening, 

A very long day today, but the 1st and 2nd lot of the trial drug has been injected into me. 

We arrived at Weston Park around 9ish and was greeted by Alison the reasearch nurse and lots of lovely nurses, the pharmacy was told to start making the drug, I had my hands warmed in a heated pillow, this is to help my veins stick up,  because apparently my veins are lady veins (rubbish in other words hehe). 

 

 Jason stayed with me for a while but I told him to go home, I knew I would be ok and he needed to go to work xx

 Then Alison began put the cannulas in to both my hands of course they never work first time and she had to do them again in different parts of my hands, but the best thing was my Keith Lemon hand haha xx

 

Bloods were taken, obs were done wee sample taken and then at 11.15 it arrived the plum coloured drug how cool is that purple drug, it's all very exciting. 
 

 

 Alison took pictures for me to post on the blog hope you can see the colour, then it started being pumped in to me. The 1st dose,  it was to take nearly 1 hour to run as it started to go in to veins, the pain was unbelievable I had been warned it really hurt but you really don't know what to expect, I put up with it I really want this drug to work,  then I could feel it go up my arm to my shoulder, the pain stopped and my arm began to feel numb. 

Alison kept asking me if I felt ok but then all of sudden I felt really strange and felt like the air I was breathing was really thick only for about 1 minute, Alison was concerned because apparently I had gone flushed she took my temp and it had raised but with in 10 minutes it had gone down, how crazy is that. It carried on being pumped into me over the  next hour and I was never left on my own. 

When it had finished my obs were taken again bloods and wee sample. 

Then the next dose was infused into me through the sample cannula this time we kept my arms wrapped up warmed to see if it eased the pain and after the first little bit went in, I'm sure it really helped, 1hour later that was it both had been administered, then my bloods and obs, and wee sample was taken again and then the same samples had to be taken 2 hours later and then 4 hours later. 

I feel really shattered, exhausted and I've a few bruises appearing but I'm at home for the evening, back to Weston Park for 8.30am tomorrow, to do it all over again. 

If this drug works it won't be available for another 10 years so how lucky I'm I to be part of this first stage of this amazing drug in fact I'm the 31st person in the whole world to have had this and it's been developed by a English man. 

Night Night 

Lots of Love 

A xxxxxxxxd